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Erin K Pieper
Erin Pieper is a single mom who advocates for finding a treatment for Friedreich's Ataxia (FA), a rare disease she is faced with. She volunteers as an Ambassador for FARA (Friedreich's Ataxia Resea...lihat lebih banyakErin Pieper is a single mom who advocates for finding a treatment for Friedreich's Ataxia (FA), a rare disease she is faced with. She volunteers as an Ambassador for FARA (Friedreich's Ataxia Research Alliance) on their blogging team. She writes about individuals who are introducing themselves to the FA community, as well as on different fundraising events and their outcomes. Erin has participated in many fundraising events, near and far, and has taken part in more than five research drug trials at the University of South Florida, in hopes of finding a treatment for FA. She is the designer of FAn, a t-shirt campaign that advocates that the purchaser and /or wearer is a fan of spreading awareness and support for those diagnosed with FA. Get yours to show support here: https://www.bonfire.com/store/fan/She spends a lot of her time overcoming the struggles of FA, in order to be as involved of a mom as possible, and make the world a kinder place. Erin would love for you to comment about this book on your favorite social media platform, connect via call or text, or come on over to her place for a chat!Visit her blog: www.mywobblyworld.com(Or at least be friends on the socials so we can stalk each other.)Facebook: Erin PieperInstagram: @peeprlihat lebih sedikit
Buku oleh Erin K Pieper
Dismantling the Disability: My Uphill Battle with Friedreich's Ataxia